Decor and bartending by the one and only:
Saturday, August 27 | 7:00 pm | at Seaholm
Group acts are welcome; invite your friends!
Three ways to participate: attend, buy a raffle ticket or make a donation.
Calling all:
people with fun personalities, hams, goof-offs, cheese balls and more . . .
as well as those that enjoy watching such folks!
Travis & Mary Alice both had milestone birthdays this past year. In lieu of traditional celebrations, we are hosting this fundraiser. In honor of our daughter, ALL proceeds will be used to help Mary Alice create a children’s book for kids with PHACE Syndrome.
About PHACE
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PHACE Syndrome is the uncommon association of large infantile hemangiomas (usually of the face) with birth defects of the brain, heart, eyes, skin and/or arteries. It is an acronym that stands for the medical names of the parts of the body it often impacts:
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P – Posterior fossa abnormalities and other structural brain abnormalities
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H – Hemangioma(s) of the cervical facial region
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A – Arterial cerebrovascular anomalies
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C – Cardiac defects, aortic coarctation and other aortic abnormalities
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E – Eye anomalies
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For more information, click here.
The term PHACE was first coined by Dr. Ilona Freiden in 1996, to describe the association of these anomalies, making it a relatively new and often unheard of syndrome. Long-term quality of life varies greatly, with some children being mildly affected and others having more severe findings. Migraine headaches and developmental delays are frequently experienced.
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There is no known cause, no known cure. While a genetic component may be involved and studies are underway to investigate this idea, no familial cases have been identified to date.
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Mary Alice feels very strongly that children with PHACE need a book to help them understand themselves and the fact that while this syndrome is quite rare, they're not alone. Let's help these kids feel the love!
Below are real faces of PHACE. Many of these pictures were taken by Positive Exposure Founder Rick Guidotti, an award-winning fashion photographer. Rick had a life-changing moment that prompted him to want to help individuals with medical conditions be seen beyond their diagnosis - "as valuable and positive parts of society," and as "beautiful." Click here for a photo gallery of his images from a PHACE conference.
Buy Event Tickets
Date:
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Cost:
Saturday, August 27
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7:00 - 10:30 pm
(Lake Pointe bus leaves promptly at 6:30 pm)
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800 W. Cesar Chavez St, Austin, TX 78701, aka the Seaholm Power Plant (inside the west end). Parking is available in the affiliated garage.
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$55 per ticket thru Aug. 19, then $65 per ticket thru Aug. 26 and
$75 the day of.
Price includes: admission to this awesome event, one raffle ticket (for a set of Adele tickets) and food. Decor and adult beverages will be provided by the one and only Hello Trouble Hall.
How this works:
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All guests can choose their participating category:
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Sing karaoke
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Lip sync
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Be a helper...we'll need judges and folks to assist with other light duties like check-in.
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Group acts are welcomed, so gather a posse and participate!
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Judges will help determine finalists for a playoff-style competition for each category (karaoke and lip sync). Grand prizes will be awarded in each category.
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Songs can be reserved on a first-come, first-served basis, so email your choice as soon as you decide!
Click the logo below for more information on Hello Trouble Hall:
Buy Raffle Tickets or Make a Donation
The winner of our raffle prize will receive two tickets to see Adele live at the Frank Erwin Center on Saturday, November 5. This show is SOLD OUT. Need NOT be present at event to win.
Click here for more details.
Event and raffle tickets are not tax deductible. If you would like an option that is, please consider making a donation. Many thanks!
